Monday, November 24, 2008

2nd session of chemo

another round of hospital chemo over with...wooohooo
this time was a little worse...5:30, 7:30, and 10:30am jaimee was sick to her stomache from all the heavy chemo...
she slept a lot on friday, saturday, and sunday morning...crackers, diet ginger ale, and water was all she wanted while nauseous...
finally i ordered chicken tenders with bbq sauce, fresh fruit bowl, doctored up her vegetable platter with garlic salt and american cheese, and oredered a diet italian ice which made her feel a lot better...it was amazing watching her eat it all...
everyone at the city of hope are wonderful...all the doctors and nurses that come in compliment the way jaimee looks, acts, and her attitude towards everything...
jaimee always says please and thank you no matter how bad she feels...i'm very proud of her...
mom

Monday, November 17, 2008

No Epilady Duct Tape Instead :o

What a weird night of bonding...
We started out plucking nubs out of jaimee's head and decided it was taking to long...Tay had an idea of duct taping the nubs out, which Jaimee agreed to...After taping Jiamee's head we thought we would try the epilady to her head to get the rest of the nubs out but as soon as Tay touched Jaimee's head she screamed...That stopped that and we continued to duct tape jai...
Jaimee looks good bald and has a cute little head, it feels really soft...
Jaimee is off her meds and will go back into the hospital this Friday if all is well with her blood counts...She seems to be doing ok but her joints hurt and her body feels like a giant bruise...
we'll update you soon...

Thursday, November 13, 2008

A New Do

OMG...Atfer seeing clumps of hair on her pillow, floor, and brush Jaimee decided to get rid of her hair today...
Jaimee is a strange one...She wanted us to pull her hair out before she let Tay and I cut and shave it all off...That was just wrong!!!
Jaimee always cried after every haircut but for some weird reason Jaimee did not shed one tear today, she was very happy to have it all removed...
Tomorrow is another day for testing Jaimee's blood...The doc said she may need a transfusion or platelets soon...Hopefully we can use the blood and platelets Bryce has graciously donated to her...Thank you sweetheart ; *
I would like to thank everyone for being so kind to all of us, we greatly appreciate your support and friendship...
love,
Tay and Jodee

Tuesday, November 11, 2008

another blood test

Jaimee spent three hours at the hospital to test her blood count today, unfortunately they lost Jiamee's blood and had to re-take it again...Good thing they left the needle in the port a cath so it wasn't such a big deal to her...

Jaimee didn't cry at all today, she is very proud of herself and so are we ; )

Even though Jaimee's white cell count is dropping she seems to be acting normal...She even drove to my apartment and back to her dad's house today...

Saturday, November 8, 2008

11/07/08 Out Patient Chemo

Jaimee had to have her blood tested and freaked out before they stabbed (Jaimee's words) her in the port a cath, which is still sore from the placement of it : ( After a couple hours of out patient chemo she was better with the port being used...

Jaimee earned a poke bead, chemo bead, and a compliance bead for today...

This hospital is pretty cool, jaimee gets to relax in a recliner and watch TV, play wii, playstation, and other games if she wanted to...They will also bring her food, snacks, and order out for pizza...They are very nice and accommodating...

Jaimee's anemia is about the same as when she left the hospital, which is good...The doctor thinks in the next week or so her count should be dropping and may need another blood transfusion but we'll have to keep checking her count twice a week to see...(November 7th, 11th, 14th, & 18th)

Dr. Armenian told Jaimee she can be off of her diet until she goes back into the Hospital on November 21st...wooohooo...She's craving everything and eating it all...it's pretty amusing and amazing...

11/08/08
Jaimee commented how she almost didn't cry for her Neulasta (helps bring up her white cell count) shot today...She did pretty good...

We're very proud of her...
Mom

Monday, November 3, 2008

I'm Home

Today was Jaimee's best day in the hospital...
She was unleashed from all those tubes and bags she had attached to her
The doctor said her parents do not have to give her a shot everyday like we thought
Jaimee was sent home with 7 different kinds of medications to take throughout the week-no shots until Friday...woohoo...
She met and took a picture with the, "Fight For Life" police and sheriff teams which may get published in their newsletter, we'll see...
http://www.fightforlife.org/
Jaimee earned 16 beads of courage for everything she went through so far and will continue to earn more throughout her journey
http://beadsofcourage.net/

Jaimee's immune system is not the same as everyone else, with chemo she will not be able to go shopping, b-day parties, school, family gatherings, or anywhere else with a lot of people around...If Jaimee has a fever of 101-102 degrees she will have to be admitted to the hospital...Hopefully with our flu shots we won't catch anything and give it to her...

Jaimee is on a strict diabetic and low tyramine diet http://www.healthsquare.com/mc/fgmc2007.htm which we're trying to follow...We'll be cooking a lot of fresh stuff for Jaimee and giving the leftovers to Tay...hehehe...Dr. Armenian said Jaimee will have an uncontrollable hunger that will amaze us...We can't wait to see it happen...

We go back on Friday for her check up, shots, and to meet and greet other patients going through cancer...

Saturday, November 1, 2008

1st & 2nd Day of Chemo

What a horrible experience for Jaimee...
Jaimee felt dizzy and nauseous with her first treatment today...It was like she was drunk but without any alcohol...She said she hates to throw up and did it four times last night...
They figured out that 50mg of Benedryl is way to much for Jaimee to handle and cut it in half which eliminated the dizziness, hopefully that will help stop her from getting sick...
With all the chemo Jaimee is having she sleeps a lot and doesn't want to eat, nothing sounds good to her...
The doctor came in to check on Jaimee and said she is doing better then some of his other patients and everything is going well...Jaimee was relieved to hear that and even smiled, which was nice to see again...
Mom

October 30, 2008

Poor Jaimee, it looks like a vampire bit her on the neck...The surgeon tried to place Jaimee's port on the left side but had some complications with the swollen lymph nodes in the way so they had to place the port on the right side instead...ouchy

Jaimee's room wasn't ready to check into after surgery so we had to push her around in a wheel chair and eat lunch at the cafeteria, which she loved...We finally checked Jaimee in her room just before the the Oncology team came in to consult with us...

Dr. Aremenian gave us a lesson on each Chemo medication Jaimee will be getting (Bleomycin, Etoposide, Doxorubicin, Cyclophosphamide, Vincristine, Prednisone, & Procarbazine) and what to expect from all of them...Jaimee also needs to gargle with Biotine and swish and swallow with Nystatin to try and prevent mouth and esophagus sores...Yucky!!!

Since Jaimee's PET scan showed cancer in her bone marrow she did not have to have another bone marrow biopsy...wooohooo...With that said, Jaimee is in Stage 4 B but Dr. Armenian is confident that the, "City of Hope" will cure her from Hodgkin's disease...

Jaimee did have to have 2 units of blood pumped into her since her blood count was so low (8.7)...Jaimee and I were up all night with the nurses checking on her for adverse reactions, vitals and constantly going to the bathroom...The doctor said Jaimee will need more transfusions along the way but we don't know when...Bryce donated on Thursday but I guess it takes a couple days to filter it out so we had to use the blood bank instead...