Thank you Dr. Soo...
i wanted to let everyone know how special you are to jaimee, tay, and myself...you are one of a kind and very special to us...you not only treat my girls for their orthodontic work but also took time out of your busy schedule to donate your blood to jaimee...you are not only a wonderful orthodontist but a wonderful person as well...we appreciate all that you do for us...
jodee ; )
Friday, January 30, 2009
January 30, 2009
jaimee had a wonderful time today despite the bone marrow tests...
dr armenian and nurse practitioner debbie were joking around and making the whole situation a lot less stressful for us...they said they wanted to do the first synchronized bone marrow test as dr a did jaimee's right hip and nurse debbie did her left hip...dr a receives a 0 for synchronization but deserves a 10 for performance, he did great for his first time at the city of hope...
jaimee was given two kinds of medications which made her laugh hysterically at every little thing, she even laughed at the discomfort she felt from the bone marrow aspiration...jaimee was saying the funniest things (which i won't mention ;0 )and sang the song from step brothers (thanks mikey)...you had to be there...she was hilarious...
the protocol that jaimee is on has worked well for her...the pet scan showed all but one lump has disappeared ; ) but the bone marrow is still lighting up with the scan which might be from the neulasta...if it's not the neulasta we'll have to discuss what other disease jaimee might have...he'll give us the results on tuesday...
for the next month jaimee will not have to stay in the hospital for chemo treatments but will have long one day treatments twice a week for the next two weeks...no more hospital food...woohoo
we are very happy and proud to be dr armenian's first patient at the city of hope...we can't wait to be his first success story as well, he's wonderful...
we'll up date again after we receive the results from the bone marrow tests...
have a great week end...
dr armenian and nurse practitioner debbie were joking around and making the whole situation a lot less stressful for us...they said they wanted to do the first synchronized bone marrow test as dr a did jaimee's right hip and nurse debbie did her left hip...dr a receives a 0 for synchronization but deserves a 10 for performance, he did great for his first time at the city of hope...
jaimee was given two kinds of medications which made her laugh hysterically at every little thing, she even laughed at the discomfort she felt from the bone marrow aspiration...jaimee was saying the funniest things (which i won't mention ;0 )and sang the song from step brothers (thanks mikey)...you had to be there...she was hilarious...
the protocol that jaimee is on has worked well for her...the pet scan showed all but one lump has disappeared ; ) but the bone marrow is still lighting up with the scan which might be from the neulasta...if it's not the neulasta we'll have to discuss what other disease jaimee might have...he'll give us the results on tuesday...
for the next month jaimee will not have to stay in the hospital for chemo treatments but will have long one day treatments twice a week for the next two weeks...no more hospital food...woohoo
we are very happy and proud to be dr armenian's first patient at the city of hope...we can't wait to be his first success story as well, he's wonderful...
we'll up date again after we receive the results from the bone marrow tests...
have a great week end...
Friday, January 16, 2009
friday clinic
we only spent two hours at the clinic this morning...wooohooo...
jaimee's white blood cell count (wbc) was still to high from her neulasta shot last saturday...we hope her wbc count will be on the normal side when she has her bone marrow tests on january 30th...jaimee will also have a pet scan, chest x-rays, and respiratory tests on january 21st...they will compare all tests with the base tests taken in october...hopefully we'll see a change for the better...
the next round of chemo will be postponed for a week or two until the tests are back and we consult with dr armenian...
jaimee ate cheddar cheese, pepperoni, and natto with shoyu tonight, she's happy to be off her tyramine diet and not wasting anytime doing it ; )
jaimee's white blood cell count (wbc) was still to high from her neulasta shot last saturday...we hope her wbc count will be on the normal side when she has her bone marrow tests on january 30th...jaimee will also have a pet scan, chest x-rays, and respiratory tests on january 21st...they will compare all tests with the base tests taken in october...hopefully we'll see a change for the better...
the next round of chemo will be postponed for a week or two until the tests are back and we consult with dr armenian...
jaimee ate cheddar cheese, pepperoni, and natto with shoyu tonight, she's happy to be off her tyramine diet and not wasting anytime doing it ; )
Tuesday, January 13, 2009
not a typical day (6.5 hours)
jaimee and i went to the city of hope today for her tuesday & friday blood test but when the test came back jaimee's counts were way down ; (
this was the first time jaimee had to be given platelets, it looks like concentrated orange juice going into her...jaimee couldn't look, she closed her eyes the entire time...after the platelets were done they started the blood transfusion which she couldn't look at either, she's funny...even though they gave jaimee benedryl to help sleep through it all she woke up for the veggie pizza we ordered and went back to sleep again...yummmmy ; )
just before we left today we talked to jaimee's social worker to see what kind of fundraiser the octagon's could do for the tweener's (18-21 year olds)...this age range of kids are too old for the ronald mc donald camp or qualify for the make a wish foundation (jaimee was bummed)...even though these young adults receive medical bills in their name they are still kids at heart and deserve to have something to look forward to as well...we heard a couple of nurses might have started something and are inquiring about it, hopefully we'll hear something soon...
thank you to the oco octagon's for involving tay and asking her to help out with her sister, i really appreciate it...
jodee
this was the first time jaimee had to be given platelets, it looks like concentrated orange juice going into her...jaimee couldn't look, she closed her eyes the entire time...after the platelets were done they started the blood transfusion which she couldn't look at either, she's funny...even though they gave jaimee benedryl to help sleep through it all she woke up for the veggie pizza we ordered and went back to sleep again...yummmmy ; )
just before we left today we talked to jaimee's social worker to see what kind of fundraiser the octagon's could do for the tweener's (18-21 year olds)...this age range of kids are too old for the ronald mc donald camp or qualify for the make a wish foundation (jaimee was bummed)...even though these young adults receive medical bills in their name they are still kids at heart and deserve to have something to look forward to as well...we heard a couple of nurses might have started something and are inquiring about it, hopefully we'll hear something soon...
thank you to the oco octagon's for involving tay and asking her to help out with her sister, i really appreciate it...
jodee
Saturday, January 10, 2009
vfw fundraiser
jaimee would like to thank everyone that donated money to her from the vfw christmas party...she is overwhelmed with everyone's thoughtfulness and appreciates the $100.00check given to her...
i'm very sorry this is a month after the vfw fundraiser...i would have written this sooner but was unaware of the whole event...
jodee
i'm very sorry this is a month after the vfw fundraiser...i would have written this sooner but was unaware of the whole event...
jodee
Low RBC
jaimee had to have another blood transfusion yesterday...her red blood cell count was down to 7.2 which is very low...this was the reason why jaimee felt so tired and wanted to sleep all day...
jaimee had to have her neulasta shot today to bring up her white blood cell count...hopefully her counts will be up by tuesday, her next clinic/lab test day...
since jaimee's billirubin count was up (she looked a bit yellow) tay and I took a long walk with jaimee at the beach to get some ulta violet rays in her system...what a fun beautiful day...
fyi: tay was amazed with all the dead creatures that were along the way and took pictures of them...she also saved a giant hermit crab from being seagull food...
jaimee had to have her neulasta shot today to bring up her white blood cell count...hopefully her counts will be up by tuesday, her next clinic/lab test day...
since jaimee's billirubin count was up (she looked a bit yellow) tay and I took a long walk with jaimee at the beach to get some ulta violet rays in her system...what a fun beautiful day...
fyi: tay was amazed with all the dead creatures that were along the way and took pictures of them...she also saved a giant hermit crab from being seagull food...
4th Chemotherapy
jaimee started her 4th chemotherapy on january 2, 2009...
two hours after they started with jaimee's chemotherapy she got sick to her stomach...after eating saltine crackers and diet sprite all day she decided to ask bryce to make her rice soup(juk)with a lot of ginger in it, this was the only thing she wanted to eat and held down...i felt so helpless and bad for her...
jaimee went through four different kinds of anti nausea medications which helped her sleep...she still woke up alomost every hour to go to the restroom...
the nurses were feeling sorry for jaimee and were rubbing her back and trying to make her comfortable...this hospital is absolutely the best place to be, everyone is great here...
in two weeks jaimee will be having a bone marrow test on each side of her hips, pet scan, and a few other tests...they promised jaimee she will not be awake for the bone marrow test which made her very happy...
if all goes well with the tests dr armenian said jaimee may not have to be hospitalized for chemo anymore...wooohooo...
two hours after they started with jaimee's chemotherapy she got sick to her stomach...after eating saltine crackers and diet sprite all day she decided to ask bryce to make her rice soup(juk)with a lot of ginger in it, this was the only thing she wanted to eat and held down...i felt so helpless and bad for her...
jaimee went through four different kinds of anti nausea medications which helped her sleep...she still woke up alomost every hour to go to the restroom...
the nurses were feeling sorry for jaimee and were rubbing her back and trying to make her comfortable...this hospital is absolutely the best place to be, everyone is great here...
in two weeks jaimee will be having a bone marrow test on each side of her hips, pet scan, and a few other tests...they promised jaimee she will not be awake for the bone marrow test which made her very happy...
if all goes well with the tests dr armenian said jaimee may not have to be hospitalized for chemo anymore...wooohooo...
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