Bone Marrow Test Today : (

Today was the most traumatizing day ever.

I was scheduled to have a bone marrow biopsy and aspiration, which i was majorly stressing about. We got there and waited for the nurse to call me in. When she did she took my weight and blood pressure. After she took my blood pressure she decided to surprise me with a blood test. I absolutely hate blood tests and since it was a surprise it made everything worse. I had a panic attack and started crying. I think I scared the other patient in the room and the nurse as well. After the blood test we had to sit and wait for the doctor. Before the doctor came in the nurse came in to give me medicine to relax. I wasn't as scared for this shot because i just had my blood drawn a few minutes earlier. So the nurse pinched my skin and stuck me with the needle and I thought this isn't bad I can do it. But then she started to inject the medicine and my skin started to burn. the burning intensified as the medicine was injected into my arm. I felt like I had an inferno in my arm. The shot was supposed to relax me but I think it made everything worse. I listened to my iTouch to try to keep my mind off of things and it worked until the doctor came in. So when the doctor came in he told me to lay on my side in the fetal position to find the best spot for the bone marrow biopsy. I was crying and the doctor kept on telling me it was a small procedure but it didn't matter to me because it involved needles and blood. By this time i was extremely nervous as he was swabbing my hip with betadine and alcohol. Dr. Lim then gave me a numbing shot to the hip and then another one into the hip bone, which was more painful then he said it would be. Now it was time to start the biopsy. The doctor said I would only feel pressure but I felt everything that he was doing and it was definitely more than pressure. I cried and screamed a few times...The music did not distract me at all. My chest felt like it was going to collapse and my leg felt like it wanted to fall off, i was hating life. It was the worse experience of my life.

Dr. Lim went over the PET scan and told us I am in at least stage 3 of my disease and we'll find out next Tuesday if the cancer is in my marrow which will up grade me to stage 4. We then decided it would be best for me to go to, "The City of Hope" where they have more treatment programs with experimental drugs and clinical studies. We also decided to check out the pediatric care center verses the adult center. We have our first appointment on Monday and hopefully will be starting chemo this week.

Thank you Nancy Sakakura and Staci Fujita for all the help you have given us. Dr. Lim said that the City of Hope is the best choice for me.

Wig hunting today...AAAGGGHHH
When we walked into the store I was excited and kinda creeped out. It was weird because there were a bunch of heads all over the walls with creepy faces on them. but there was a hot pink wig and i started to get excited because I wanted to try it on. We then were greeted by this crazy Asian lady to try a few wigs on. She was very pushy, rude, and not a very good listener, she picked out wigs that she said were cute, and said no to the ones i wanted to try on...The wigs she picked were probably good for people her age, not for me. She said she has been doing this for 31 years and knows what she is doing and said I was not ready for a wig yet.

We then walked out very disappointed and went to this really nice lady in Westminster that hand makes real hair wigs for a fraction of what it would cost somewhere else. They were extremely nice and we finally had a good experience. Tomorrow we will check out one more wig place and see what they have to say. This is so exhausting!

Thanks for your thoughts and concerns...I will update you all soon.

Jaimee